A Cognitive Test Battery for Individuals with Intellectual Disabilities (IRBnet ID 698133-6)
PURPOSE OF STUDY
The purpose of this study is to validate the NIH-Toolbox Cognition Battery (NIH-TCB) for individuals with intellectual disabilities. Individuals with Fragile X Syndrome and other intellectual disabilities are often asked to participate in cognitive assessments for individualized program planning or to identify changes in cognition due to medications. Many of the current cognitive assessments do not take into account the small changes that may occur over the course of time. We are testing the NIH-TCB to see if it is sensitive to these small changes and to evaluate if this is a useful tool for individuals with Fragile X Syndrome and other diagnoses associated with intellectual disabilities. The institutions participating in this study include the University of Denver, University of California-Davis, Rush University, and Northwestern University. The projected end date for this study is 2025.